A love worth giving

Sam board
I want to publicise a documentary about a tragedy that could affect any of us… the need for transplant organs to help conditions like my cystic fibrosis (CF)*…

‘A Love Worth Giving’ tells the extraordinary story of newly-married Sam and Luke, a couple madly in love. Sam has CF and her health is getting worse, her only hope of survival is a double lung transplant. (Poignantly, you can see what Sam desperately wanted as she wrote it on her board at home: ‘Please God, Come on Lungs!’)…

Together they build a life around the physical and emotional challenges of waiting for a donor, a roller coaster journey of false alarms and hospital stays. One night, Sam was called to the hospital as a pair of lungs had become available but unfortunately they found out that the organs weren’t viable and the next morning, they were sent home.

Everyone thought Sam would get a transplant, especially Luke. But the pool of available organs was extremely small and Sam’s condition was deteriorating. The disease had progressed so far that it destroyed her lungs and in April 2013, she stopped breathing entirely. Her wait for an organ donor had taken too long. When Sam died waiting for new lungs, all her family and friends went into shock.

James W. Newton, close friends of Sam and Luke and a film director, asked himself: why don’t more people donate their organs when they die? The answer, of course, is far from simple but it got him thinking – wouldn’t more people want to be organ donors if they knew that thousands of people, like Sam and Luke, are waiting for a transplant?

To donate or not to donate
More than 10,000 people need an organ transplant in the UK, but 3 of those will die waiting every day.
The UK operates on an opt-in system where you have to declare your wish to be an organ donor and it’s for this reason why raising awareness of the need for donors is so important.

The death of a registered donor could transform the lives of up to nine people and there are many conditions – including CF – where patients are dependent on the generosity of organ donors for successful treatment.

Could Sam and Luke’s tragic story raise awareness of the need for more organ donors or perhaps one day, even initiate a fundamental change to an opt-out system of organ donors?

Through telling Sam and Luke’s story, the director hopes to encourage others to think about donating their organs when they no longer need them. We can all make a difference, even after our death.

This is explained better in this short Kickstarter video.

How you can make this film a reality
‘A Love Worth Giving’ tells the story of Sam and Luke, a young couple torn apart while waiting for a new pair of lungs. It’s a short documentary that highlights the need for organ donors in the UK. But the Director urgently needs help to raise the funds to finish the film and release it to audiences worldwide…
You can check out some of the amazing rewards and make a pledge here:

I’ve pledged my support to this initiative. I encourage you to help as well.

After all, one day it could be my family and friends waiting for that donor call for a new set of lungs for me; and when it doesn’t come, watching me take my last breath…

I will keep you posted on my life-affirming moments, trials and tribulations as and when they happen. Please keep reading and sharing my blog and sign-up (on the right hand side tab) if you have not already done so.

Yours cup half full.
Tim

Tim Wotton (CF author)

Find out more via the ‘A love worth giving’ website

In other news
My CF memoir is now available as an Audio Book with a voiceover by JP Nicholas. Check it out here.

My memoir is a finalist for the UK People’s Book Prize! Please help me to win by adding a comment via this link. I find out if I’m the eventual winner early by May 2015!

* Cystic Fibrosis is one of the UK’s most common life threatening inherited diseases, affecting over 10,000 people. The condition affects the internal organs, especially the lungs and digestive system, by clogging them with thick sticky mucus. This makes it hard to breathe and digest food. Each week, five babies are born with the condition, however, each week, three young lives are also lost to it. There is currently no cure for CF. However, existing gene therapy trials in the UK are bringing people with the illness closer to a form of cure but CF is not that well known and would benefit from more public donations. For more information and to find out more view the CF Trust Website.

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About Tim Wotton

I live with my lovely wife (Katie) and spirited nine-year old son (Felix) in Morden, Surrey; working full-time as an internal communications specialist in the Oil & Gas sector. I have played sport, particularly hockey, tennis all my life and now regularly go to the gym. Cystic fibrosis has been a huge factor in my life, but not one that overshadows it. I have always had great support from my loving family - parents Margaret and Douglas (RIP), elder brother Chris and my twin brother Jez. I have many rich life insights based on knowing I have a reduced life expectancy and battling against the odds for over 44 years. My eyes and heart have been opened by my health struggle. I feel empowered to share my life lessons to help anyone with health and life issues to overcome. My passions include Paul Smith clothes, dress shirts (believing that it's enlightening to dress like it's your last day on earth), Alfa Romeo cars, spicey food, Harlequins and England rugby, Southampton FC, Wimbledon village and common, Dorset, seascapes, sunsets and military history. I am available for public speaking on this subject matter and can be contacted via timwottonAThotmailDOTcom. I have written a book 'How have I cheated death?' based on my euphoric countdown year to 40 which was published in 2014 and won the 2015 'Best Achievement' Award at the UK People's Book Prize. It is available via e-book, audiobook and paperback at Amazon and to order from UK bookstores. Go to the relevant sites below or in the UK go to a WH SMITH, Waterstones or Foyles bookstore and give them my name, book title and this ISBN number (9781849637190). It’s also available via GARDNER’S, BERTRAM’S, AUSTINMACAULEY.COM, BLACKWELL’S, PLAY.COM, AMAZON.CO.UK AND AMAZON.COM
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4 Responses to A love worth giving

  1. Smolik, Sam L says:

    Hi Tim, good posting as usual!!!

    All the best,
    Sam

  2. Margaret Wotton says:

    Hi Tim,

    What a poignant blog! How did you get involved with the story about Sam and Luke?

    Ofcourse I want to pledge.

    That can’t have been easy writing that knowing it could be you one day needing a transplant.

    lots of love

    Mumxxxxxxxxxxxxx

    Sent from Windows Mail

  3. Jan Closs Wilson says:

    I had two friends with CF – brother and sister. This was in the days when it had to be a heart/lung transplant. The brother got his transplant and, although he only lived another 6 months due to (oh the irony) a problem with the heart, he managed to do some amazing things that he would never have accomplished without the transplant. The sister never got her transplant and died when she was 21, still waiting. Previous to this, I had been very squeamish about being a donor. After seeing the transplant system relatively up close and personal (and having visited my friend at Harefield during his recovery), it transformed my views. Not only is it vital for those waiting for a life-saving organ, it is an amazing way for a part of us to live on and do good in the world.

    • Tim Wotton says:

      Dear Jan, great to hear from you and thanks for sharing your story and that of your friends and what they went through! All very sad and poignant.
      Let’s all hope the future for donors will be different and better!
      Best wishes
      Tim

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