Never Thought…

Team Wotton playing cricketThis month, I wanted to highlight some things I’d never thought I’d ever do, say or feel in my 44 years surviving the life-threatening condition cystic fibrosis (CF)*…

DO
Getting married, let alone just celebrating my 12th wedding anniversary with Katie via a trip to see the Seven Sisters coastline in East Sussex!

Having a healthy son (Felix is now 8 yrs old)

Playing hockey and cricket with my own son.

Going to the gym and not feeling completely out of place in relation to the fitness of the other gym incumbents.

Playing league hockey for my 30th consecutive year.

Helping so many people in the UK and around the world with my writing (this blog and my book) and through other media.

Being a published author with my memoir ‘How have I cheated death?’ and seeing my book in Waterstones and recently winning a book award (in May I won the Best Achievement award at the UK People’s Book Prize)

Being closer to 45 than 40.

Meeting an active and fit CFer who is nearly 60 (#JerryCahillCFLegend)

SAY
Sharing my views on ‘bucket lists’ with terminally ill Rowena Kincaid for a BBC TV documentary ‘Before I kick the bucket’ (for the record, I don’t keep a bucket list but enjoy the small things every day)

Using my pigeon Spanish to respond to people in Brazil and Argentina on Facebook who saw a short documentary about me which recently appeared (with Brazilian Portuguese voiceover) on the popular Brazilian programme ‘Domingo Espetacular’. A man called Souza Carlos told me on Facebook: “I just saw your interview. Man, you’re a winner. Congratulations!”

Saying “the music was better in the 1980’s” (OK, that’s a trick one. I’ve been saying this line since 1st January 1990!)

Exclaiming “What’s 4 extra tablets a day when I’m already swallowing 40!” on hearing that a possible new drug ‘Orkambi’ comes in pill format.

Commenting not in jest and with much passion, “I love peas and lentils.”

FEEL
Being mindful of appreciating each day and making a tangible difference to those around me.

Finding a way to manage my daily health demands with a demanding business role.

Feeling moments of complete and unadulterated contentment with the pure joy of life.

Being at peace with myself, my illnesses and with the world.

I will keep you posted on my life-affirming moments, trials and tribulations as and when they happen. Please keep reading and sharing my blog and sign-up (on the right hand side tab) if you have not already done so.

Yours cup half full.

Tim
Tim Wotton (CF author)

In other news
My CF memoir is now available as an Audio Book with a voiceover by JP Nicholas. Check it out here.
http://www.amazon.co.uk/How-Have-Cheated-Death-Unabridged/dp/B00TQKDA2U/ref=sr_1_3?s=books&ie=UTF8&qid=1427321515&sr=1-3&keywords=tim+wotton

* Cystic Fibrosis is one of the UK’s most common life threatening inherited diseases, affecting over 10,000 people. The condition affects the internal organs, especially the lungs and digestive system, by clogging them with thick sticky mucus. This makes it hard to breathe and digest food. Each week, five babies are born with the condition, however, each week, three young lives are also lost to it. There is currently no cure for CF. However, existing gene therapy trials in the UK are bringing people with the illness closer to a form of cure but CF is not that well known and would benefit from more public donations. For more information and to find out more view the CF Trust Website.

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About Tim Wotton

I live with my lovely wife (Katie) and spirited nine-year old son (Felix) in Morden, Surrey; working full-time as an internal communications specialist in the Oil & Gas sector. I have played sport, particularly hockey, tennis all my life and now regularly go to the gym. Cystic fibrosis has been a huge factor in my life, but not one that overshadows it. I have always had great support from my loving family - parents Margaret and Douglas (RIP), elder brother Chris and my twin brother Jez. I have many rich life insights based on knowing I have a reduced life expectancy and battling against the odds for over 44 years. My eyes and heart have been opened by my health struggle. I feel empowered to share my life lessons to help anyone with health and life issues to overcome. My passions include Paul Smith clothes, dress shirts (believing that it's enlightening to dress like it's your last day on earth), Alfa Romeo cars, spicey food, Harlequins and England rugby, Southampton FC, Wimbledon village and common, Dorset, seascapes, sunsets and military history. I am available for public speaking on this subject matter and can be contacted via timwottonAThotmailDOTcom. I have written a book 'How have I cheated death?' based on my euphoric countdown year to 40 which was published in 2014 and won the 2015 'Best Achievement' Award at the UK People's Book Prize. It is available via e-book, audiobook and paperback at Amazon and to order from UK bookstores. Go to the relevant sites below or in the UK go to a WH SMITH, Waterstones or Foyles bookstore and give them my name, book title and this ISBN number (9781849637190). It’s also available via GARDNER’S, BERTRAM’S, AUSTINMACAULEY.COM, BLACKWELL’S, PLAY.COM, AMAZON.CO.UK AND AMAZON.COM
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16 Responses to Never Thought…

  1. Bo Williams says:

    Best Yet !

    Bo Williams
    brand-links
    5 Ching Court,
    49-51 Monmouth Street,
    London WC2H 9EY
    Tel: +44 (0) 207 240 6100
    Fax: +44 (0) 207 240 6017
    http://brand-links.co.uk/

  2. Denise Exon says:

    Great reading this. Your thoughts and outlook make me appreciate every day life more too. Lots love to Team Wotton From Dennis and Mike Xxxx

    Sent from my iPad

    >

  3. Alison Howells says:

    Hi Tim,
    I would just like to say that you are my inspiration, my youngest son, Tony 16.3 years is a fighter too. Reading your posts gives me the strength to fight the never ending battle to get him to comply with his meds and physio regime (currently I’m losing), but thankfully he is fairly well at the present time.
    Keep fighting the fight Tim were all rooting for you x

    Alison x

    • Tim Wotton says:

      Dear Alison,
      You’ll never know how much your words mean to me. It was for people like you and your son that I started my blog and wrote my book.
      Best wishes
      Tim

  4. Maximo says:

    Hi Tim !!!! Writing is definitivelly yours!!! You really transmit hope and it does not sound like a recording or a cliche….but not a hope related to life expectancy but a hope that CFer’s can really live FULL their lifes, and even more enjoy and appreciatte many, many things that non-Cfers do not do because we are “always underwater” dealing with the day to day issues that do not allow us to see and focus on the real and important matters…! Un fuerte abrazo desde Argentina!!!! Máximo

  5. Jo says:

    Dear Tim,
    I started reading your blog when an ex work colleague died that you were friends with (Paul Harvey).

    Just a quick note to say that you are an inspiration. I love reading your posts and seeing your pictures, you, your wife and your son are truly amazing.

    Thank you,

    Jo

    • Tim Wotton says:

      Dear Jo,
      As a friend of the wonderful chap that was Paul Harvey, I was deeply honoured to receive your kind message and sentiment. It means a lot to me.

      Best wishes
      Tim

  6. Kay Lake says:

    Hi Tim,
    I first read your book, then saw you on TV and know you are such an inspiration to so many people, beyond those touched by CF. I was really grateful to see you share your philosophy of taking time to enjoy the small things in life on ‘Before I kick the bucket’. My terminally ill Aunt taught me this when I was a teenager. Although she also inspired me to travel the world and do exciting things, the times I felt pure joy are invariably when doing simple things, like walking on a frosty winter day when the sun’s shining.
    Here’s to those small, but magical moments and for you and your loved ones to enjoy them for many more years.
    My sincere best wishes, Kay

  7. joyce nesbitt says:

    God bless you [i think he already has]

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