Tag Archives: How have I cheated death?

(In)visible in the workplace

I recently had an article titled ‘Winning at the workplace with cystic fibrosis’ (CF)* published on pharmaceutical TEVA’s website. In the article I posed this pertinent question… Why have I pretty much hidden away my condition, my big survival achievement and … Continue reading

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Elevating hope

It’s powerful when you meet people who could transform your health and thousands like me with the chronic condition cystic fibrosis (CF)*… I recently presented about my survival story and health challenges to US-based ReCode Therapeutics. They are a genetic … Continue reading

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End of the beginning

After a lifetime of defying the chronic lung condition cystic fibrosis (CF)*, this week I turned 50 and with it came new beginnings… For my vintage of CF adult, getting to 30 was the Holy Grail. When I made it … Continue reading

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Optimistic

As challenging as life is right now with getting through the pandemic, I have reasons to be optimistic… My health has received a boost. The game-changing drug Kaftrio I started taking for my cystic fibrosis (CF)* in September continues to … Continue reading

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Something Changed!

I recently started a new cystic fibrosis (CF)* wonder drug called Kaftrio. Here’s what happened… At 49 with a lot of lung damage from battling CF and diabetes, I would cough throughout the day and night, struggle to breathe deeply … Continue reading

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Snakes and Ladders

Life has imitated art in the latest instalment of my survival against all odds with the chronic illness cystic fibrosis (CF)*… I’d expect everyone to be familiar with the ‘Snakes and Ladders’ board game. Landing on a specific part of … Continue reading

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No choice

Quite often in life, you only find out the full extent of your inner resilience and fight when you have no other choice… The definition of a warrior, especially in former times, is a brave or experienced soldier or fighter. … Continue reading

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One more try

As we countdown to Christmas, I offer you the gift of prose – a resilience poem – which I reckon all of us can benefit from… I honestly believe that there are very few people who live a charmed life, despite appearances … Continue reading

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TIM Talk

Exciting news… I have been invited to speak and promote my Cystic Fibrosis (CF)* book at the Wantage Betjeman Literary Festival in late October. Find out more… A life battling the chronic conditions of CF and diabetes is full of … Continue reading

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Reach for the sky

Much has happened over these last few months to make me look up towards the heavens… The expression ‘the sky’s the limit’ is used when there are no limits to what something or someone can achieve and to demonstrate that … Continue reading

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