Tag Archives: CF

2023 thru a lens

I’ve chosen 10 photos to sum up 2023 – living, working, playing, battling & ultimately finding joy despite my health challenges with cystic fibrosis (CF)* & diabetes. This is my year thru a lens… February, as I posted about in … Continue reading

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The Most Important Task

What’s the most important task you achieve every day? Mine quite literally saves my life. Find out more… There’s a saying that if you can achieve the ‘most important task’ by early morning, than the rest of your day will … Continue reading

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Never give up!

Something happened last weekend that defied belief & proved to me that it’s important to never give up… I have previously shared on this blog that due to the health improvements I’ve gained from taking the new cystic fibrosis (CF)* … Continue reading

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All I ever wanted

I reflect on another year defying the odds with cystic fibrosis (CF)* and the one gift I wanted more than anything, that until recently, proved the most elusive… My ask of Santa I’m extremely low maintenance as far as the … Continue reading

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(In)visible in the workplace

I recently had an article titled ‘Winning at the workplace with cystic fibrosis’ (CF)* published on pharmaceutical TEVA’s website. In the article I posed this pertinent question… Why have I pretty much hidden away my condition, my big survival achievement and … Continue reading

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Elevating hope

It’s powerful when you meet people who could transform your health and thousands like me with the chronic condition cystic fibrosis (CF)*… I recently presented about my survival story and health challenges to US-based ReCode Therapeutics. They are a genetic … Continue reading

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What if?

Catching Covid as someone who is clinically vulnerable with cystic fibrosis (CF)* was always a huge worry. Well, now it’s happened… My family and especially my wife (who is a senior nurse) have worked very hard to avoid getting it … Continue reading

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Gone but not forgotten

Occasionally something will come from leftfield, stop you in your tracks and cause deep emotion and reflection. I had one such moment recently which I want to share with you… I was in St. James Park, London, relaxing in the … Continue reading

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Free at last

It’s been a year since I started the cystic fibrosis (CF)* wonder drug Kaftrio and a lot has changed for the better… Here’s my Top 10 list of positive changes: I have more energy and have gained some weight. I … Continue reading

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End of the beginning

After a lifetime of defying the chronic lung condition cystic fibrosis (CF)*, this week I turned 50 and with it came new beginnings… For my vintage of CF adult, getting to 30 was the Holy Grail. When I made it … Continue reading

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