Right there

soapSome divine intervention came my way recently just when I needed it the most; and it came in the most curious of forms…

I had been very busy at work, having gone many months without a worthwhile break. In mid-July, with my energy levels severely depleted, I succumbed to a harsh infection which really affected my lungs and exacerbated my cystic fibrosis* and diabetes. This meant a lot of extra treatment and physiotherapy, often fitted in late at night in order to get as good a sleep as possible.

Separately, one of my oldest friends from my hometown has been courageously battling leukaemia in hospital which has been utterly horrible for him and emotional for us to witness.

There had been a steady build-up and I was slightly on the edge – mind, body and spirit. I was holding out for some time off with my family. This nirvana came a few weeks back when Katie, Felix and I travelled to Portugal for a week of holiday.

Sign of the time
On arrival, in the reception area of the hotel, I was drawn to this teenage girl sitting in her wheelchair with family and friends. She looked like she had cerebral palsy. Despite being able to communicate with those around her, she was permanently dribbling onto a handkerchief draped over her chest. It made tears well up in my eyes, which in-turn accentuated my feeling of sadness.

On our way to the apartment, I definitely felt the need for some form of divine support or signal to help calm my soul and restore my life-balance.

I do look out for signs when life is too helter-skelter or feels out of control. These signs have come in the form of objects which keep crossing my path, songs which I keep hearing on the radio and certain lyrics or messages I keep reading in the form of repeat phrases, words or slogans.

Having been up early to catch the flight from London and following a tiring journey, I went to wash my face in our bathroom. And there was my sign – right there in front of me…

It was the bar of soap. Most of the time with such a functional object as a bar of soap, we pick it up, un-wrap it, use and discard it or put it back in the dish. Not this time.

On the wrapper of the soap was written the following words: ‘Enjoy your life!’

Three simple words. ‘Enjoy your life!’

But those words summed things up so succinctly. It served as a wonderful and timely reminder that life can be short, so it needs to be enjoyed. After all, can you think of anything better as your life mantra or to be said of you as part of your eulogy: “He/ she enjoyed their life!”

Who’d have ever thought that a humble bar of soap in Portugal would offer me the guidance I so badly required. It was quite literally, the right sign at the right time.

Keep your eyes and ears open as your much-needed signal could be right there in front of you… What sign will you see or hear today?

I will keep you posted on my life-affirming moments, trials and tribulations as and when they happen. Please keep reading and sharing my blog and sign-up (on the right hand side tab) if you have not already done so.

Yours cup half full.
Tim

Tim Wotton (CF author)

* Cystic Fibrosis is one of the UK’s most common life threatening inherited diseases, affecting over 10,000 people. The condition affects the internal organs, especially the lungs and digestive system, by clogging them with thick sticky mucus. This makes it hard to breathe and digest food. Each week, five babies are born with the condition, however, each week, three young lives are also lost to it. There is currently no cure for CF. However, existing gene therapy trials in the UK are bringing people with the illness closer to a form of cure but CF is not that well known and would benefit from more public donations. For more information and to find out more view the CF Trust Website.

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Never Thought…

Team Wotton playing cricketThis month, I wanted to highlight some things I’d never thought I’d ever do, say or feel in my 44 years surviving the life-threatening condition cystic fibrosis (CF)*…

DO
Getting married, let alone just celebrating my 12th wedding anniversary with Katie via a trip to see the Seven Sisters coastline in East Sussex!

Having a healthy son (Felix is now 8 yrs old)

Playing hockey and cricket with my own son.

Going to the gym and not feeling completely out of place in relation to the fitness of the other gym incumbents.

Playing league hockey for my 30th consecutive year.

Helping so many people in the UK and around the world with my writing (this blog and my book) and through other media.

Being a published author with my memoir ‘How have I cheated death?’ and seeing my book in Waterstones and recently winning a book award (in May I won the Best Achievement award at the UK People’s Book Prize)

Being closer to 45 than 40.

Meeting an active and fit CFer who is nearly 60 (#JerryCahillCFLegend)

SAY
Sharing my views on ‘bucket lists’ with terminally ill Rowena Kincaid for a BBC TV documentary ‘Before I kick the bucket’ (for the record, I don’t keep a bucket list but enjoy the small things every day)

Using my pigeon Spanish to respond to people in Brazil and Argentina on Facebook who saw a short documentary about me which recently appeared (with Brazilian Portuguese voiceover) on the popular Brazilian programme ‘Domingo Espetacular’. A man called Souza Carlos told me on Facebook: “I just saw your interview. Man, you’re a winner. Congratulations!”

Saying “the music was better in the 1980’s” (OK, that’s a trick one. I’ve been saying this line since 1st January 1990!)

Exclaiming “What’s 4 extra tablets a day when I’m already swallowing 40!” on hearing that a possible new drug ‘Orkambi’ comes in pill format.

Commenting not in jest and with much passion, “I love peas and lentils.”

FEEL
Being mindful of appreciating each day and making a tangible difference to those around me.

Finding a way to manage my daily health demands with a demanding business role.

Feeling moments of complete and unadulterated contentment with the pure joy of life.

Being at peace with myself, my illnesses and with the world.

I will keep you posted on my life-affirming moments, trials and tribulations as and when they happen. Please keep reading and sharing my blog and sign-up (on the right hand side tab) if you have not already done so.

Yours cup half full.

Tim
Tim Wotton (CF author)

In other news
My CF memoir is now available as an Audio Book with a voiceover by JP Nicholas. Check it out here.
http://www.amazon.co.uk/How-Have-Cheated-Death-Unabridged/dp/B00TQKDA2U/ref=sr_1_3?s=books&ie=UTF8&qid=1427321515&sr=1-3&keywords=tim+wotton

* Cystic Fibrosis is one of the UK’s most common life threatening inherited diseases, affecting over 10,000 people. The condition affects the internal organs, especially the lungs and digestive system, by clogging them with thick sticky mucus. This makes it hard to breathe and digest food. Each week, five babies are born with the condition, however, each week, three young lives are also lost to it. There is currently no cure for CF. However, existing gene therapy trials in the UK are bringing people with the illness closer to a form of cure but CF is not that well known and would benefit from more public donations. For more information and to find out more view the CF Trust Website.

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Never Stop

Winning my book award at People's Book Prize

Winning my book award at People’s Book Prize

An eventful last month and cystic fibrosis (CF)* week in the UK can be summed up by two words: NEVER STOP

Never stop forgetting those dear CF friends and acquaintances that have sadly passed away from this relentless condition. Recently over the course of three days I learned of the deaths of four CFers. One was my mid-50’s mentor and fellow author Richie Keane from New York, who I had exchanged a lot with on social media.

– It’s funny how life works. When I was sitting in London’s Embankment Gardens thinking about the sad loss of Richie Keane, Neil Tennant of the Pet Shop Boys walked past! I greeted him, we shook hands. I told him he was a star and he said “Thank you. So are you!”

Never stop improving the awareness and understanding of the general public about CF: the daily medical regime required to defy an early demise and the appreciation that despite this incessant condition, CFers can and do lead full lives and make a difference.

– CFer Bianca Nicholas from the group Electro Velvet sung her heart out for England in the Eurovision Song Contest, Nick Talbot has bravely taken on Mount Everest twice and Richard Eagles is about to go to Ecuador with other transplant recipients to climb Cotopaxi, one of the highest volcanos in the world, as part of an amazing adventure called ‘Climbing for my Donor’.

Never stop developing new medicines to make a step-change in our health and survival chances. Vertex are bringing to market the new combination drug ‘Orkambi’ (I want the job of coming up with drug names – I can do better than ‘Orkambi’ – sounds like’s Bambi’s cousin!) which will benefit 50% of CFers with the double Delta 508 mutation (if it’s funded – hint hint) and the UK Consortium are making good progress with their on-going gene therapy trials. Pharmaceuticals must never stop until CF stands for Cure Found!

Never stop connecting and engaging with each other on social media. Due to the risks of cross-infection, we CFers have been advised not to see each other face-to-face, which can make it a very lonely illness to combat. CF Week in the UK 6-13 June has the ‘Power of Us’ theme which encourages the CF community to share their stories.

Never stop my utter commitment to the daily medical regime, regular exercise, sport & gym sessions and topping up my cup of positivity.

Never stop sharing experiences, life lessons and knowledge on surviving CF, as I have done with this blog and also with my memoir ‘How have I cheated death?’ and recent US podcast explaining the rollercoaster ride which Katie and I endured to become proud parents to our son Felix.

– I’m now an award winning author – my book won the ‘Best Achievement’ award at the UK’s People’s Book Prize in late May, televised by Sky News. (Go to 20:00 to see my winning speech)
My podcast with CF legend Jerry Cahill about my survival and being a dad with CF.

And finally, never stop celebrating and maximising each and every new day that we’re given with our friends and family.

I will keep you posted on my life-affirming moments, trials and tribulations as and when they happen. Please keep reading and sharing my blog and sign-up (on the right hand side tab) if you have not already done so.

Yours cup half full.

Tim
Tim Wotton (CF author)

Find out more about CF Week in the UK.

Find out more about Richard Eagles’ ‘Climbing for my Donor’ adventure and if you can help with his funding; a huge thank you!

In other news
My CF memoir is now available as an Audio Book with a voiceover by JP Nicholas. Check it out here.

* Cystic Fibrosis is one of the UK’s most common life threatening inherited diseases, affecting over 10,000 people. The condition affects the internal organs, especially the lungs and digestive system, by clogging them with thick sticky mucus. This makes it hard to breathe and digest food. Each week, five babies are born with the condition, however, each week, three young lives are also lost to it. There is currently no cure for CF. However, existing gene therapy trials in the UK are bringing people with the illness closer to a form of cure but CF is not that well known and would benefit from more public donations. For more information and to find out more view the CF Trust Website.

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A love worth giving

Sam board
I want to publicise a documentary about a tragedy that could affect any of us… the need for transplant organs to help conditions like my cystic fibrosis (CF)*…

‘A Love Worth Giving’ tells the extraordinary story of newly-married Sam and Luke, a couple madly in love. Sam has CF and her health is getting worse, her only hope of survival is a double lung transplant. (Poignantly, you can see what Sam desperately wanted as she wrote it on her board at home: ‘Please God, Come on Lungs!’)…

Together they build a life around the physical and emotional challenges of waiting for a donor, a roller coaster journey of false alarms and hospital stays. One night, Sam was called to the hospital as a pair of lungs had become available but unfortunately they found out that the organs weren’t viable and the next morning, they were sent home.

Everyone thought Sam would get a transplant, especially Luke. But the pool of available organs was extremely small and Sam’s condition was deteriorating. The disease had progressed so far that it destroyed her lungs and in April 2013, she stopped breathing entirely. Her wait for an organ donor had taken too long. When Sam died waiting for new lungs, all her family and friends went into shock.

James W. Newton, close friends of Sam and Luke and a film director, asked himself: why don’t more people donate their organs when they die? The answer, of course, is far from simple but it got him thinking – wouldn’t more people want to be organ donors if they knew that thousands of people, like Sam and Luke, are waiting for a transplant?

To donate or not to donate
More than 10,000 people need an organ transplant in the UK, but 3 of those will die waiting every day.
The UK operates on an opt-in system where you have to declare your wish to be an organ donor and it’s for this reason why raising awareness of the need for donors is so important.

The death of a registered donor could transform the lives of up to nine people and there are many conditions – including CF – where patients are dependent on the generosity of organ donors for successful treatment.

Could Sam and Luke’s tragic story raise awareness of the need for more organ donors or perhaps one day, even initiate a fundamental change to an opt-out system of organ donors?

Through telling Sam and Luke’s story, the director hopes to encourage others to think about donating their organs when they no longer need them. We can all make a difference, even after our death.

This is explained better in this short Kickstarter video.

How you can make this film a reality
‘A Love Worth Giving’ tells the story of Sam and Luke, a young couple torn apart while waiting for a new pair of lungs. It’s a short documentary that highlights the need for organ donors in the UK. But the Director urgently needs help to raise the funds to finish the film and release it to audiences worldwide…
You can check out some of the amazing rewards and make a pledge here:

I’ve pledged my support to this initiative. I encourage you to help as well.

After all, one day it could be my family and friends waiting for that donor call for a new set of lungs for me; and when it doesn’t come, watching me take my last breath…

I will keep you posted on my life-affirming moments, trials and tribulations as and when they happen. Please keep reading and sharing my blog and sign-up (on the right hand side tab) if you have not already done so.

Yours cup half full.
Tim

Tim Wotton (CF author)

Find out more via the ‘A love worth giving’ website

In other news
My CF memoir is now available as an Audio Book with a voiceover by JP Nicholas. Check it out here.

My memoir is a finalist for the UK People’s Book Prize! Please help me to win by adding a comment via this link. I find out if I’m the eventual winner early by May 2015!

* Cystic Fibrosis is one of the UK’s most common life threatening inherited diseases, affecting over 10,000 people. The condition affects the internal organs, especially the lungs and digestive system, by clogging them with thick sticky mucus. This makes it hard to breathe and digest food. Each week, five babies are born with the condition, however, each week, three young lives are also lost to it. There is currently no cure for CF. However, existing gene therapy trials in the UK are bringing people with the illness closer to a form of cure but CF is not that well known and would benefit from more public donations. For more information and to find out more view the CF Trust Website.

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Mirror Man

Imagine meeting someone for the first time and you both knew each other inside out? Well, that’s what happened when I recently met a cystic fibrosis (CF)* veteran from America…

I met Jerry Cahill in a London hotel to record a podcast for the global community, on behalf of the Boomer Esiason Foundation, about my experiences of being a dad with CF. Jerry is a late 50’s CF legend from New York State. He has had a successful business career, sporting life in track and field (particularly the pole vault) and a will to live, which was helped by a double lung transplant a few years back which he took amazingly in his stride.

His mantra ‘You Cannot Fail’ has always influenced the way Jerry lives his life and it has become his personal mission to spread that message to as many people as possible. He firmly believes that you should never give up hope and always, always strive to be the hero of your own story.

Due to the risk of cross-infection we were mindful to keep a distance from each other and not shake hands. But even though our personal contact was limited, it was obvious that something interesting was taking place over the 90 minutes we spent together…

Meeting my match
Meeting an older CFer like Jerry was like looking into the mirror but viewing me in a different guise. Although we didn’t look the same and we spoke in different accents, we were clearly cut from the same cloth with our DNA – not just that we had CF and related diabetes – something more holistic and ground-breaking.

Just like me, he believes that everyone should be proud of his/her achievements, big and small, and should find the magic in just being alive for another day.

Just like my family, Jerry’s family took everything day-by-day and never let themselves over-focus on the illness or the possible complications that could arise with CF at any time.

We are both on an even par of positivity, focusing on living, breathing and making a difference to our lives and the lives of others. In a symbiotic way, we intuitively understand that CF is an integral part of us but it does not define us and it does not overly hinder the way we wish to live our lives.

With almost no need to verbally confirm it, there was this immediate bond and kinship. We just got each other; having gone through many of the same daily health battles, popped the same pills, nebulised the same drugs, suffered the IV treatments, injected the same insulin, coughed in harmony thousands of miles apart but equally fought back relentlessly time and again through our medical adherence, sport and unshakeable mental fortitude.
Jerry Cahill

Looking through Jerry’s book of inspirational quotes and his survival insights, I was left in awe by a photo of him running the ‘Run to Breathe’ 10K in New York’s Central Park while on oxygen pre-transplant. If ever there was a photo that encapsulated ‘triumph of the spirit’ and demonstrates what it takes to defy a life-limiting illness like CF, this was it.

If ever you needed inspiration or perspective, I’d like you to remember this image. I’ll never forget meeting my mirror man…
IMG_4914

I will keep you posted on my life-affirming moments, trials and tribulations as and when they happen. Please keep reading and sharing my blog and sign-up (on the right hand side tab) if you have not already done so.
Yours cup half full.

Tim
Tim Wotton (CF author)

For more information on Jerry Cahill, visit his website.

In other news
My CF memoir is now available as an Audio Book with a voiceover by JP Nicholas. Check it out here.

My memoir is a finalist for the UK People’s Book Prize! Please help me to win by adding a comment via this link. I find out if I’m the eventual winner early by May 2015!

* Cystic Fibrosis is one of the UK’s most common life threatening inherited diseases, affecting over 10,000 people. The condition affects the internal organs, especially the lungs and digestive system, by clogging them with thick sticky mucus. This makes it hard to breathe and digest food. Each week, five babies are born with the condition, however, each week, three young lives are also lost to it. There is currently no cure for CF. However, existing gene therapy trials in the UK are bringing people with the illness closer to a form of cure but CF is not that well known and would benefit from more public donations. For more information and to find out more view the CF Trust Website.

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Magic Moments

Recently being filmed for a BBC documentary about ‘Bucket Lists’ got me thinking how my life-limiting cystic fibrosis (CF)* motivates me to live every day like it’s my last day on earth…

‘Bucket Lists’ (what some people choose to do if they have a reduced or terminal health prognosis, before they “kick the bucket”) tend to be outlandish and quite expensive ideas, such as holidays of a lifetime, seeing wonders of the world or enjoy life events in exotic locations.

The BBC liked my variation of a Bucket List and wanted to give the programme some balanced opinions. My ‘list’, though never formally written down, is one that anyone can choose to follow, often costs nothing and can be achieved every day.

Man in the moment
As a direct result of having been told I wouldn’t live past 17 because of my chronic CF, now at 43, I feel empowered to live every day like it could be my last.

Every hour of every day is important for me as I never know when I will run out of time. Having CF and type 1 diabetes drives my thirst for life. The way I see it, each day surviving my conditions is physically and mentally debilitating; but at the same time, every day is poignant and needs to feel special to counteract the harshness. Thus it has to be punctuated by magic moments which must be savoured to the maximum. These moments form my unofficial bucket list.

My wife, Katie, and seven-year-old son, Felix, provide the necessary motivation to keep on top of my survival battle and offer me a ready supply of life-affirming memories.

I’m around for them as much as possible, and give Felix quality time, coaching him to play hockey, taking my turn to get up early with him at the weekend, going on family days out and taking Katie out for dinner.

I dress each day like it’s my last day on Earth, and never leave my favourite clothes in the wardrobe waiting for that special moment. I don’t see the need to gripe about the small things I hear around the office, instead I take time each day to appreciate something natural like a sunset or landscape.

I also take full advantage of the windows in each day to fit in socialising, my business consultant job, and not forgetting my vital exercise in the form of hockey on some Saturdays and evening gym sessions.

But it’s more than this. Put yourself in my shoes to really understand my plight.

If tomorrow wasn’t a given, what would you do differently today? What would you spend time thinking about? How would you live and leave your lasting legacy?

Living and leaving my legacy
I passionately feel that it’s crucial to cherish the life you have right now, not the life you hope to have in 10 years-time. Every extra day that I can wrench from my conditions gives me more time to create my lasting memory as well as leave a positive trace with people I know or meet.
magic moments

Think of my scenario as a form of Groundhog Day, where I wake each morning to the wide-range of opportunities and moments available to secure my own legacy. The trick is to have your eyes and mind open and be ready to seize and appreciate them. As a sample, during the course of most days, I do the following:

Wear those meaningful items of clothing
Say something kind to a loved one
Do that thoughtful act for a friend in need
Make a stranger feel happy and special
Message someone I’ve not been in contact with for a while
Smile at someone who never usually smiles
Give my son an extra-long hug
Make my wife laugh
Stop still in awe to witness a beautiful landscape, sunset, cloud formation or the wonders of nature
Close my eyes and feel content about an aspect of my life

… as tomorrow may never come and I would have missed the chance!

As much as I despise my daily health battle (consisting of 2-3 hours of meds), it has given me a perspective on life that many people may never attain or will only encounter later in life. People with a life-threatening condition have a pronounced ability to not only identify, but fully appreciate magic moments, as they contrast so strikingly with the usual daily hardship. As I said, I find it liberating to look at each day as potentially my last day on Earth.

Why don’t you give it a try? Start your unwritten bucket list and see how it makes you feel?

Elton John: “I guess that’s why they call it the blues
Don’t wish it away
Don’t look at it like its forever

I will keep you posted on my life-affirming moments, trials and tribulations as and when they happen. Please keep reading and sharing my blog and sign-up (on the right hand side tab) if you have not already done so.
Yours cup half full.

Tim
Tim Wotton (CF author)

In other news
My CF memoir is a finalist for the UK People’s Book Prize! Please help me to win by adding a comment via this link. I find out if I’m the eventual winner early in 2015!

My lovely CF friend, Lucy Watson, shares helpful eating tips via her CF and Healthy blog. This post is about the benefits of Turmeric. It’s a must read…

* Cystic Fibrosis is one of the UK’s most common life threatening inherited diseases, affecting over 10,000 people. The condition affects the internal organs, especially the lungs and digestive system, by clogging them with thick sticky mucus. This makes it hard to breathe and digest food. Each week, five babies are born with the condition, however, each week, three young lives are also lost to it. There is currently no cure for CF. However, existing gene therapy trials in the UK are bringing people with the illness closer to a form of cure but CF is not that well known and would benefit from more public donations. For more information and to find out more view the CF Trust Website.

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Breathe with Me

Awareness of my health condition cystic fibrosis (CF)* is improving, but very few people really appreciate how it feels to have chronic lung function. Spare a minute to breathe with me…

The intention of this blog and my published book ‘How have I cheated death?’ was to offer hope and survival lessons to the CF community but also to increase the understanding of the general public about the illness.

I have noticed a familiar trend during my recent media exposure (BBC Blog, BBC Radio 4 interview, Guardian and Express newspaper articles) and especially at corporate speaking events.

During my presentation introduction, I always ask the audience to put their hands up if they’ve heard of CF; whereby almost all respond. (25 years ago, less than half would have raised their hand). I then ask them to keep their hand up if they really understand how serious the condition is or have a personal connection with it. Only 5% keep their hands up…

The non-CF community who have been introduced to my story, whether it be media producers behind my array of publicity or the general public who have read my book already, tend to be flabbergasted by two main facets of the condition:
1. Just how life-threatening it is and that it kills people early
2. How much treatment has to be taken every day to stay alive with no remission period

This is not a surprise to me and is indicative of the awareness versus understanding debacle with this illness.
Obviously it is very difficult to experience the full range of problems encountered by people living with CF, like chronic shortness of breath, constant coughing and debilitating tiredness. Breathing is not actually straightforward for most people with CF as the build-up of mucus in the lungs means that less oxygen is available, which causes problems with breathing normally.

Put yourself in my place
You’ll remember the recent ice-bucket challenge on Facebook that went viral this summer to help people, even for a short while, feel numb with cold to represent how it might feel for someone struck down my ALS (aka Motor Neurone Disease).

The majority of humans take for granted the simple act of drawing a breath, which they manage so successfully and with little or no effort. But for CFers when struck down by lung infection, this can be the ultimate test each day, and one which can inhibit us performing the most simple tasks like walking or going up a flight of stairs.

There’s a way anyone can now feel what it’s like to breathe like a CFer.

By breathing through a narrow straw, you can get some sense of what it feels like with reduced lung function – during intense moments when breathing is a struggle or on the back of a heavy coughing fit.

Try this breathing exercise:
• Take a narrow drinking straw and put it in your mouth (not the wide, flexible kind).
• Seal your lips around it
• Pinch your nose or use a nose clip
• Breathe in and out for 30 – 60 seconds
• Notice how much harder you have to work to draw breath?

Now imagine having to cope with that feeling when you are climbing the stairs, running for a bus or in the case of a child, just trying to keep up with your friends while you play.

To add some musical accompaniment to this breathing exercise, a wonderful song ‘Breathe with Me’ has been written by TWF, featuring the stunning AnnJo (see below), with these poignant lyrics:

Breathe with me
And you will see how hard it is
To live your life
When breathing is as hard as this
Breathe with me
And you will see just what it takes
To do the things
You take for granted everyday

The lyrics of the song along with breathing exercise give people the chance to momentarily feel how restricted our lungs can be and for one minute know the full spectrum of emotion we CFers go through as we fight for our very breath during a coughing fit or when our lungs are struggling.

Join the Strawfie Challenge – By nominating friends/clubs/companies to take part too, you will help to spread understanding about CF. You can donate as little as £1.00 per strawfie (picture of you doing the breathing exercise) by texting BWCF64 £(amount) to 70070.

So, tell a friend or friends about this blog post, share the ‘Breathe with Me’ song and the breathing exercise. Add this exercise into your CF fundraising events.

Use your healthy breath to breathe life into the lungs of CFers around the world. Your one minute versus my 43 year lifetime sentence. I would take the former option in a heartbeat. In this season of goodwill to others, please take some time to breathe with and like me.

Thanks and festive wishes.

I will keep you posted on my life-affirming moments, trials and tribulations as and when they happen. Please keep reading and sharing my blog and sign-up (on the right hand side tab) if you have not already done so.
Yours cup half full.

Tim
Tim Wotton (CF author)

View more information at the Breathe with Me website http://www.breathewithme.info/index.htm
TWF featuring annaJo – ‘Breathe with me’

Other news
The UK CF Trust has just released this thought-provoking film about the importance of breathing to CFers… ‘The Breathe Before’

My CF memoir is a finalist for the UK People’s Book Prize! Please help me to win by adding a comment via this link. I find out if I’m the eventual winner early in 2015!
http://www.peoplesbookprize.com/winners2014.htm
My BBC Blog Carpe Diem
http://www.bbc.co.uk/news/blogs-ouch-30129362
My appearance on BBC Radio 4 Saturday Live show (main interview at the 1 hour 10 min mark)
http://www.bbc.co.uk/programmes/b04t9j63

* Cystic Fibrosis is one of the UK’s most common life threatening inherited diseases, affecting over 10,000 people. The condition affects the internal organs, especially the lungs and digestive system, by clogging them with thick sticky mucus. This makes it hard to breathe and digest food. Each week, five babies are born with the condition, however, each week, three young lives are also lost to it. There is currently no cure for CF. However, existing gene therapy trials in the UK are bringing people with the illness closer to a form of cure but CF is not that well known and would benefit from more public donations. For more information and to find out more view the CF Trust Website.

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